Wendy Burson BowersDealing with this... Mom has Alzheimer's at 69... Dad has congestive heart failure... I'm in Massachusetts they are in California... We need to navigate this journey prepared and together 😮
Jennifer CWWhen I visited my mom, I often came away with the sense that while there wasn't expressed recognition on her part, there was felt recognition. I strongly believed that she could sense that someone who deeply cared about her was in her presence. I also found it helpful to sing songs to her that she had sung to me, play music that had meaning for her when she was younger such as hymns, and read books that she had read to me. I felt that through her connection to those activities (rocking along to the music, a faint smile at a picture in book), we connected.
Kala CotaThe Forgotten You
When I look at you I see beyond
Back to the days, now long gone
I see a pretty lady, smiling there
As you sit in your wheelchair
I see humor in those wrinkled eyes
Remnants of days gone by
The twinkle has faded, but I recall
Those moments when we had a ball
Your hands are folded in your lap
But I remember when you never sat
Busy hands at work for our family
Those memories are so clear to me
A clever wit, a teasing grin
I look back and remember when
You touched everyone with your grace
I see beyond this time and space
I remember who you used to be
Before the arrival of this disease
You will forget, you’ll fade away
But I’ll tell your story every day
Until others too, can clearly see
The lives stolen by this disease
It’s the least that I can do
I’ll remember the forgotten you.
Written by: Kala Cota
Jacqueline MarcellBe sure to ask your loved one's age, as they may be 'living' in a time when you were a child, so they don't recognize you as an adult. As soon as you know how old they think they are, adjust what you talk about to that time. Instead of trying to convince them that their child is you, all grown up, simply say that their child is doing very well and is so happy and they send her a big hug and kiss.
Realize that an hour later when you ask their age, it may have changed to another time, so just go-with-the-flow, making their happiness and sense of peace your goal.
Jennifer CWA more significant challenge for me were phone calls. My mother was in a setting where there wasn't sufficient staffing to insure that someone assisted her in remaining on the phone when I called. I lived 8 hours away and tried to call regularly just so she could hear my voice but I often felt as if she had dropped the phone and had no way of knowing if she was still there. It was really discouraging and always left me feeling sad and empty. I'm hoping that better care facilities have developed good solutions to this challenge.
2 weeks ago
Carol AppleAmen Leslie. There are so many people who don't have people to visit them as we saw for ourselves when we visited our beloved.
2 weeks ago · 1
Amanda Ruth SklarzEven when my grandmother didn't recognize me, she eventually did after spending some time with her. I miss her dearly!
The Women's Alzheimer's Movement shared Live Lokai's video.
Live Lokai We're so excited to announce that The Women's Alzheimer's Movement is teaming up with Live Lokai! When you purchase the Black and White Lokai bracelet set and select The Women's Alzheimer's Movement as your charity of choice, Live Lokai will donate $2 that will be used to help us fund women-based research and wipe out Alzheimer's! You can #ChoosetoChange
Introducing the Black & White Lokai, a wearable reminder that comes in a pair.
You can now choose your cause at Lokai.com/mycause and we'll donate $2 to that charity! Together we can #choosetochange...
Caregiving is such an important and often thankless job but along they way, you can learn a lot about yourself and how to care for others. Patricia M. Annino shares the lessons she learned as a primary caregiver. ... See MoreSee Less